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Any good web site suggestions are gratefully received - please click on the envelope picture to email me your suggested link

 

Categories

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Neuroblastoma Links - Your gateway to the Neuroblastoma Community of advice, information, and support.
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 Uk Cancer Charities - Websites within the UK linked with Cancer and sick kids
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 General Cancer Links - Charites and information on all types of Cancers
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 Free Personal Homepages - Create a page to keep family and friends up-to-date
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 Support for Brothers and Sisters - as it says
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 Bereavement Links - Some sites that you may find useful, helpful, and comforting after the death of a loved one.
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 Spiritualism - Mediumship and Clairvoyants I would recommend
 

 

 
Neuroblastoma Links
 

The Neuroblastoma (Cancer) Online Support Group - 600 other people from all over the world who have loved ones with Neuroblastoma. An excellent source for advice, opinions, friendship, support - I found this invaluable, and couldn't have survived without it! Be aware that this should not replace the advice of your own Dr/Specialist - every child, and every treatment differs - so please keep that in mind when getting advice from others.

 
     
Diary of a Death
  Here is an interesting article about Online Cancer Support Groups
     
  The Society works exclusively for these children in raising funds for British research into the disease and offering information and support for anyone affected by Neuroblastoma - UK Site

   

  Through their experience with Neuroblastoma and network of families and medical professionals, they are committed to use their experience as a tool in supporting the needs of the children and their families and provide funding to the medical community for new and advanced research studies - USA Site
       

  The Neuroblastoma Children's Cancer Society is a group made up of volunteers, many of whom have children or relatives who are victims or survivors of this disease. The organization is an advocate for the children who suffer from neuroblastoma and is dedicated to serving as a support center for their families. The primary focus of the organization is to raise money to assist local research in neuroblastoma cancer, and to raise national awareness to focus additional research and funding until a cure can be found - USA Site
       

  The NANT consortium is a group of 14 Universities and Childrens Hospitals with strong research and treatment programs for neuroblastoma. Working closely together, they test promising new therapies for high-risk and relapsed neuroblastoma. The majority of funding for NANT comes from the National Cancer Institute - USA Site
       

 

A brilliant resource for newly diagnosed Neuroblastoma families. Run by Ellen Hanson, who's son was diagnosed with Neuroblastoma in 2003 - I met Ellen on N-Blastoma Online Support Group.

To let you to know that there are resources, and there is information, that can help you. There is incredible support, education and love. Ellen's goal is to connect some of these things, to have a central place to obtain information and support, to have a place that you can refer back to again and again and again, and not worry about "losing" the information, or "forgetting," when you are totally overwhelmed, a place where there is communication, where you can learn that there is Hope (with a capital “H”), and that there are options for you and your child. This is a web site where you can feel comfortable and know that you are not alone. There are many that have gone before on this journey, and thankfully there are many that are able to share - USA Site

       
  Links to web sites of Neuroblastoma kids, similar to our warriors, but listed according to location, to make it easier to find people near to you. This web site is run by a fellow Neuroblastoma parent that I met on N-Blastoma Online Support Group.
       
 

In 2000, a 4 year old Neuroblastoma fighter named Alexandra "Alex" Scott announced a seemingly simple idea -she was holding a lemonade stand to raise money to help "her doctors" find a cure for kids with cancer. The idea was put into action by Alex and her older brother, Patrick, when they set up the first "Alex's Lemonade Stand for Childhood Cancer" on their front lawn in July of 2000.

For the next four years, despite her deteriorating health, Alex held an annual lemonade stand to raise money for childhood cancer research. Following her inspirational example, thousands of lemonade stands and other fundraising events have been held across the country by children, schools, businesses, and organizations, all to benefit Alex's Lemonade Stand Foundation for childhood cancer. On August 1st, 2004, Alex died peacefully at the age of 8 -- she had raised over $1 million for childhood cancer research in her short lifetime.

       
 

Lunch for Life® is about helping children who have been diagnosed with neuroblastoma, a deadly form of cancer that strikes thousands of infants and toddlers each year.
This fundraising program is a simple but powerful solution: We ask people to donate one day’s lunch money to the Children’s Neuroblastoma Cancer Foundation (CNCF), a public charity dedicated to curing this cancer.
The cost of one lunch, if enough people contribute, will help save lives, fund research for a cure and provide support for families. Please donate your lunch money to the Children's Neuroblastoma Cancer Foundation and help us eradicate this disease.

       

 

   Coins 4 Kids is a volunteer fundraising organization formed in association with the Children's Neuroblastoma Cancer Foundation (CNCF), a 501(c)(3) non-profit charity.  Donations help fund promising Neuroblastoma research studies and go to where they will have the most impact.  Donations are tax-deductible and all tax receipts are issued by the CNCF.
       
 
The Italian Association for the fight against Neuroblastoma NPO born on July 23, 1993 at the initiative of some parents of sick children and medical oncologists of the "G. Gaslini" of Genoa, whose Division of Pediatric Hematology and Oncology, is the main point of reference in Italy for research and care of the pediatric cancer Neuroblastoma. The Italian Association for the fight against Neuroblastoma NPO born on July 23, 1993 at the initiative of some parents of sick children and medical oncologists of the "G. Gaslini" of Genoa, whose Division of Pediatric Hematology and Oncology, is the main point of reference in Italy for research and care of the pediatric cancer Neuroblastoma.

Site is in Italian - but can be translated with Google Site Translator

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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UK Cancer Charities

       
  Macmillan Cancer Support improves the lives of people affected by cancer. They provide practical, medical, emotional and financial support and campaign for better cancer care.
       
 

Provide help from clinical expertise to free accommodation near hospitals.

CLIC Sargent has 350 full and part time staff. In addition to this, there are 60 funded or part funded (50%) NHS posts. There are also 60 social worker posts sub-contracted to local authorities.

With these services and staff we can support the children, young people and families affected by cancer every step of the way
       
       
  Online community which contains advice written by parents who have a child with cancer, or visit the living with cancer section which contains information about day-to-day issues that can arise.
You can create your own profile, enter your own stories and experiences for others to read, and leave messages on our message board. CLIC hope that, over time, this section will develop into a area of help and support for everyone who has been affected by childhood cancer in some way or who are raising money for CLIC Sargent.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

  

Post a smile on a sick childs face - a UK based charity that arranges for cards and gifts to be sent to sick children in hospital. Nominate a sick child to be featured on the Post Pals web site or chose from children already featured and send someone a card or gift. Care of addresses or hospital addresses are used to protect privacy where required.

 

 

 

 

 

       
  Europe's leading cancer information charity, with over 4,500 pages of up-to-date cancer information, practical advice and support for cancer patients, their families and carers.

 

 

 

 

     
 

Bobby’s Fund help children who suffer from serious illnesses by providing direct help with the cost of family wellness products, good organic nutrition and financial support for medical treatments abroad that are not currently available in the UK.

In April 2005 three year old Bobby Wright was diagnosed with stage 4 Neuroblastoma - money raised for Bobby's treatment has been deposited at the Royal Bank of Scotland, available at a moments notice should Bobby relapse. The surplus & return on Bobby's treatment fund is being used to finance Bobby's Fund and is committed to providing the money needed to families unable to finance a fully intergrated, holistic treatment plan, that Bobby enjoyed.

 

 

 

 

 

 

 

 

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General Cancer Links
       

  ACOR offers access to 159 mailing lists that provide support, information, and community to everyone affected by cancer and related disorders.

 

 

 

 

  

A site for teens with cancer who have lots of living to do! You'll get straight information - we know what it's like.All pics and stories are of "real" teens with cancer. You can connect with others - like yourself. Your friends will see what you really need. Your family will learn how to get a grip.

Site in Spanish and English

 

 

 

 

 

 

   For cancer patients, families, health care professionals and the general public to get accurate cancer-related information at no charge.
     

 

 

 

 

   An independent non-profit site, established in 1996 to provide a directory of childhood cancer resources.

 

 

 

       
  Valuable cancer-related information of all kinds. For the general public, patients, and health professionals, consumer-oriented information on a wide range of topics as well as comprehensive descriptions of their research programs and clinical trials.

 

 

 

 

   CureSearch unites the world's largest childhood cancer research organization, the Children's Oncology Group, and the National Childhood Cancer Foundation through our mission to cure childhood cancer. Research is the key to the cure.

 

 

       
  The mission of Hope Street Kids is to eliminate childhood cancer through pioneering research, advocacy and education.
       
  A web site for parents, friends, and families of children who have or had childhood cancer. This resource center was created by and for people who know young people who are recovering from cancer. Most of the contributors to this site are members of the ACOR pediatric cancer mailing lists, especially ped-onc, ped-onc-survivors, and ALL-kids.
       
  The award-winning patient information website of the American Society of Clinical Oncology (ASCO). With nearly 25,000 members in the United States and abroad, ASCO is the world's leading professional organization representing physicians of all oncology subspecialties who care for people with cancer.

 

 

 

 

 

 

 

 

 

 

 

 

 

   Provides information and awareness for children and adolescents with cancer and their families, to advocate for their needs, and to support research so every child survives and leads a long and healthy life.

 

 

 

 

       
  Children fighting for their lives have very little to smile about. You can change that by sending them some "Happy Mail." Cheery cards give these kids a few more smiles, a little more hope, and a reason to get out of bed each day.
Experience the satisfaction of making a sick child's day and giving them something to look forward to. Send a card and a hug -- one of the smiles you create just might be your own!

 

 

 

 

 

 

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Get Your Free Personal Homepage
       
 

A CaringBridge website helps keep loved ones informed during difficult times. In return, family and friends give patient and caregiver support through guestbook messages. This is FREE!!

 

 

 

 

       
 

Same as CaringBridge but with extra security preventing people from viewing your page without registering with a username and password.
CarePages are free, easy-to-use Web pages, brought to you by Revolution Health, that help family and friends communicate when a loved one is receiving care.

 

 

 

 

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Support for Brothers and Sisters

  An independent non-profit organization, is devoted to the social, educational and emotional needs of children with cancer. By providing family activities, tutoring, counseling and support opportunities, the Kids 'n Kamp network touches the lives of more than 350 children and their families each year.

 

 

 

 

 

  

Their goal is to reach out to the brothers and sisters of over 12,600 children in the U.S. and Canada who are diagnosed with cancer each year. Through their work, these siblings will feel valued, validated, heard, supported and delighted as recipients of SuperSibs! services and as participants in SuperSibs! activities.

 

 

 

 

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Bereavement Links

  This calendar has been created to specifically remember "Our Angels" who have died of a rare cancer, neuroblastoma, and other pediatric cancers.

 

 

     
  UK Based Charity helps bereaved children and young people rebuild their lives after a family death. They offer practical support and guidance to families, professionals and anyone concerned about a grieving child

 

 

 

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Spiritualism    
     
 
When a loved one passes on, especially if it is sudden and tragic, the shock and emptiness we personally experience is the same for all of us.
Yorkshire based hairdresser Steve Holbrook has been described as "Britain's Most Accurate Medium" and he proves his right to this title by giving demonstrations of mediumship and clairvoyance night after night in venues all across the UK. Unlike many other mediums he is precise and specific with his evidence, frequently naming names and dates, and even describing the nature of the illness or the accident that caused someone to pass over from this world to the next.
     
  Tony has been demonstrating mediumship for over 19yrs, and has worked all over the world and has written two highly acclaimed best-selling books, published by Hodder and Stoughton (under the Hodder Mobius imprint)
He is very proud to be one third of The 3 Mediums with Colin Fry and Derek Acorah, which has been televised twice to date. The 3 Mediums Live at the Hammersmith Apollo was the paranormal event of 2003, attracting a live audience of over 3000, and excellent viewing figures when broadcast in August 2003 as the highlight of Living TV’s special Paranormal Weekend.
       
  Colin has been conducting private sittings and performing at public demonstrations since he was 17 years old. He is a trained bereavement counsellor and the head of International College of Spiritual Science and Healing in Sweden where he regularly teaches on many subjects from psychic skills to positive thinking. Colin believes his vocation is to comfort those who need to hear or understand that a friend or loved one still exists. This he does with breathtaking accuracy.
       
  Mia Dolan, star of ITVs Haunted Homes and best selling author of titles such as The Gift & Mia's World, will be holding Psychic Demonstration Evenings across the UK as part of her ongoing tour. As a highly respected psychic and clairvoyant Mia will also be running her Psychic Schools across the country whilst touring - whether you're a beginner or already have experience, there are classes to suit all.
       
  He has captivated audiences worldwide. On his internationally distributed talk shows, Crossing Over with John Edward and John Edward Cross Country,
he uses his unique abilities to connect people with loved ones who have passed on. Deeply compelling, often startling and occasionally humorous, John’s down-to-earth approach has earned him a vast and loyal following.
       
    Sally Morgan is one of Britain’s most loved psychics and the star of her very own hit TV show Sally Morgan: Star Psychic on ITV.
Sally has always had the ability to connect with the spirit world and had her first psychic experience at only nine months old. Since then, she has learnt to control her gift and has gone on to astound even the most renowned scientists who have tested her including Professor Gary E. Schwartz from Harvard University. Her ability is so strong that not only can she read people’s past and predict their futures, she can also see, hear and speak to dead people with incredible results

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